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Education

Just like you: Lilliana’s story

| Nick Acevedo

Something as simple as a class name tag and a T-shirt might not mean much to the average 8-year-old, but to Lilliana Boczar, it means everything. Lilliana has two very rare genetic conditions; Rett Syndrome (RS) and Williams Syndrome (WS).

According to her parents, Stephan and Mari, she is the only medically documented case in the world with both.

 

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