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Community

Gulf Breeze girl’s rare condition inspires foundation, awareness

| Hansen Hasenberg

A Gulf Breeze girl’s journey with a rare genetic condition has led to an opportunity for awareness and assistance for others with diseases and conditions.

Born in December 2018, Braylen Lee is living with spinal muscular atrophy (SMA), a genetic neurodegenerative disease causing muscle weakness and atrophy. She was diagnosed with the condition at six months old.

Elizabeth, Braylen and Evan Lee. Braylen has a condition called Spinal Muscular Atrophy.

 

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