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Gulf Breeze girl’s rare condition inspires foundation, awareness

A Gulf Breeze girl’s journey with a rare genetic condition has led to an opportunity for awareness and assistance for others with diseases and conditions.

Born in December 2018, Braylen Lee is living with spinal muscular atrophy (SMA), a genetic neurodegenerative disease causing muscle weakness and atrophy. She was diagnosed with the condition at six months old.


Jeffrey Bearce, a retired police officer from Maine, is spending his final months with family, including children he isn’t related to by blood. Bearce, first diagnosed with cancer in 2009, plans a special spring vacation at Navarre Beach with three children he considers the grandchildren he never had.